THE AUTISTIC FAMILY |
The following definition is from the Autism Society of America:
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Now that is a relief, because when my son was a child (in the 60's) the condition was only just being recognised and the most popular approach was to blame the mother for poor parenting, especially if she were a lone parent. In theory, by her strength, she undermined the normal social development of her male child.
Autism is a condition that limits not only the life-options of the autistic child himself but of his parents and his siblings too. It is also a challenge that they can meet together and I want to tell you how we did exactly that. At the time, I did not care what label they put on my son. We had to cope with him and he with us from day to day. For all of us it has been an exercise of 30 years of trial and error with many frustrations, challenges and triumphs. I want to share our experience of socialising an autistic child, alienated, isolated and aggressive, to become a mildly eccentric adult, morally sound, self-directed and reasonably independent, with his family relationships intact. |
The first indication that there was something odd about my bright-eyed baby boy was that he never wanted to be picked up or cuddled. He developed an early allergy to milk so did not nurse and the only time I could satisfy my own need to sit and love him was when he was asleep.
This may not sound much of a problem unless I explain that he constantly soiled himself and the furniture, , broke my finger, attacked his sister with a pair of scissors, screamed whenever he did not wish to do something, or simply lay down in the street and refused to move. |
Yet there were times when he was quiet and brave: a lovely tiny man and a true stoic, walking with us for miles in the countryside or bearing illness and pain with patience and fortitude.
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These were exactly the strategies adopted by Blakely Hospital when finally, at the age of seven, he was accepted on a special regression and family therapy course where he joined a group as the baby and over several months moved up the hierarchy until he was helping to parent the latest arrivals. At this time there was one of those beautiful moments that makes it all worthwhile. For years I had tried to teach him to read without success. Janet and John and the train to Updown interested him not in the least. I visited him every night at Blakely where, apart from peeping round the door to see if I were there, he ignored me totally. But I continued to reinforce his security simply by being there on time and making no demands of him.
It was all so amazingly unexpected that I wept. Here was proof that he was capable of learning and of affection and that both had been developing, unseen, beneath his crust of confusion and fear. I held him tightly and leaned my head against his. " I love you, you know," I whispered. "Course I do." His comment was dismissive as he climbed off my knee and took his book back to stow it amongst other treasures in his locker. Science fiction became another route to his imagination. One rainy evening I was the only adult to queue around the block with hundreds of teenage boys and sit entranced in a cinema packed with children as furry ewoks raced air-bikes through a forest in " Return of the Jedi." The pattern of our relationship was forged. We rarely touched or spoke, but he trusted that I would be there. When he came home there were still problems, but occasionally I had glimpses of a richly creative mind as he described seagulls following a tractor “as if someone had tipped out a waste-paper basket”. Looking up into the dark, soaring pines of an autumn forest interspersed with orange and gold maples he whispered, “It’s just like music, Mum.”
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He progressed eratically, but he progressed. By the age of sixteen, he could read The Times and remember every detail of the tonnage and displacement of a ship, or the frequencies and range of a radio station. His idea of a fun weekend was to buy an underground ticket and visit every station on the line without coming up for air. He travelled alone and was quite capable of telling a man who paid him unwelcome attentions that he must leave him alone or he would call the guard.
Yet he took a blind girl under his wing, for the first time ever showing some sign of the theory of mind that allowed him to see things from another’s point of view. He pushed the wheelchair of a paraplegic boy and took great pride in cleaning buses on a work experience course. After declaring that he wanted to live independently, he was offerred a place on a residential course for young people from challenging backgrounds, then a home in a Carrgom Community and finally in a sheltered housing project where he shared an ordinary house with three other young men with “problems in living”. Later he was judged capable of looking after himself in his own flat. He has never permitted me inside the door, but we meet from time to time to go shopping together. He buys his own clothes, cooks his own food, makes his own entertainment, takes himself travelling, talks to strangers and appears to be quite contented. He has an extensive collection of videos and a laptop computer and is more capable of using a mobile phone than I am. But he still remains lovably himself. When I picked up the phone to hear his voice and excitedly asked where he was, he replied quite literally, in the Lancashire dialect he has never discarded,“I’m on t' other end of this phone, aren’t ah ?” |
Then, one day, he actually arrived on my doorstep with a gift for me on Mother’s Day (the first ever). He announced that he had not come to see me but was off on a scenic tour. He did not want anything to eat or drink, but accepted when I suggested he took a chocolate from the carton he had brought for me. When I went to take one, the box was empty. “Well", he explained, “Ah got peckish on t' way 'ere, but it’s the thought that counts.” Bless him, indeed it is....
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| Copyright © Sylvia Farley 2003 - All Rights Reserved. |